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| Meet Cole |
Cole was diagnosed with Spina Bifida, hydrocephalus and Kyphosis in-utero at his 20-week ultrasound. He first visited Primary Children's Hospital as a preemie/newborn and had his first surgery there at three months old to fix a hernia he was born with.
Cole has had a few surgeries at Primary Children's Hospital including a hernia surgery and was also there a few months ago to have his tonsils and adenoids removed. Cole comes to the Spina Bifida Clinic on a regular basis.
Cole and his parents really appreciate the clinic because they can see all his specialists at one time in a four-hour window. As Cole gets older he will have in-depth checkups once a year, unless something comes up that needs to be addressed. Specialists are always checking to make sure there isn't too much pressure in his head or that his tethered spinal cord with scar tissue doesn't grow into the spinal cord and cause damage. They also help with braces for his legs and feet and then monitor kyphosis that could cause breathing problems in the future. Cole goes to PCH every three to four months to have his bladder checked.
Cole and his parents really appreciate the clinic because they can see all his specialists at one time in a four-hour window. As Cole gets older he will have in-depth checkups once a year, unless something comes up that needs to be addressed. Specialists are always checking to make sure there isn't too much pressure in his head or that his tethered spinal cord with scar tissue doesn't grow into the spinal cord and cause damage. They also help with braces for his legs and feet and then monitor kyphosis that could cause breathing problems in the future. Cole goes to PCH every three to four months to have his bladder checked.
Cole LOVES the security guards at the hospital and his favorite doctor is Dr. Jim Gottlieb. Cole loves Dr. Gottlieb because he lets Cole pretend to be the doctor.
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| Cole and Dr Gottlieb |
Cole loves to be outside playing. His favorite activities are football, basketball, baseball, horseback riding and skiing. He loves Legos, action figures and superheroes.
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| Cole and his "Bumbo Wheelchair" made by his Father to help Cole become more active & independent |
Cole is working on being able to physically keep up with this friends. Cole's mom says, "Cole is a fun-loving kid. He loves Santa and finds all kinds of Santa's wherever he goes. He loves to ski. When he is skiing, he is always trying to get his helper to go faster or to do tricks and jumps."
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| Cole and his ski helper cruising down the ski hill |
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